One last quick update before I go to bed tonight. After I tried to nap I went back to the hospital and when I got there Emily was terrible. She was crying like I have never seen her cry before. She was feeling so discouraged and she just wanted to go home. She has to take this liquid medicine 3 times a day that is her calcium and it is very bitter tasting and she has to drink it with juice. Well Emily has never liked juice she is a water girl and the juice was making her nauseated. So at this point Emily was just so sad and so tired of taking medicine and getting blood tests (her arm is very sore but the nurses are giving putting numbing lotion on her arm to help ease the pain). It broke my heart to see her this way and it was just REALLY hard and I couldn't help but cry with her. She is also very worried that she will miss church on Sunday.
I also want to let you know that Emily's calcium level did get back up to 8.0 tonight (it needs to be at 8.2 - 8.5 and stay that way) so that is better but to get it that high she had very high doses of calcium in her IV so now they are giving her less calcium and only orally to see if it will still stay up.
Emily's cousin Summer came to visit her tonight and that perked Emily up and she even walked down the hall to the toy and game room and played with Frank and Summer for a long time. So that was just great for Emily, THANKS SUMMER!
Anyway tonight was a really hard night and I just feel so emotionally drained and so deeply sad. I am still very grateful for everyone's prayers and I feel so undeserving. Ya I am just so sad tonight and tired.
I wish I could be at the hospital with Emily tonight but Madison is still sick and I need to be here for her. Plus Scott just can't leave Emily's side he is glued to her like crazy. Scott's dad even offered to stay the night with Emily so Scott and I could sleep together and get some good rest but Scott needs to be there for his little girl.
Did I mention that tonight was so terribly hard and super sad? I feel like such a terrible person and just sad I can't even think of another word to describe my feelings.
Thanks everyone for your prayers and for just being so good to us. Please pray that Emily's calcium levels go up and stay up and she is fully healed.
Emily Mae
Friday, March 03, 2006
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23 comments:
Crystal, I'm so sad for you and Emily. I wish I didn't have to work so I could be with you and Emily. If you are still there Sunday I can come after 1 and spend the day with you or watch the kids or anything else you might need. I love you.
Steph
I can't offer any physical help given that I am so far away but my thoughts and prayers are with you all constantly. Take comfort in God's arms. Jen
PS - You and Scott have shown amazing strength through all of this. You are doing a fantasic job for all of your children.
Crystal,
I hope you are getting some sound rest as I type this. I am so sorry that Emily had a difficult night. I hope that she is sleeping soundly right now, too!
I will pray that the Lord will renew the strength of everyone in your family! And, of course, we will continue to pray for Emily's calcium levels and that she'll be in the comfort of her own home very soon!
You are doing a good job, Mom!!!!
Praying.
Oh Sweetie... I stand in agreement with all that have posted before me!!
Being emotionally drained and physically tired can raise havoc on ones soul. Please continue to seek God for His strength to fill your spirit †.
Be not discouraged... For God is with Thee Always...
Crystal please take any and/or all help that is offered to you and your family. We are blessed to have our family and friends through times such as this. The enemy wants you to do it alone... but I know you know better *smiles*.
Praying the Lord will give you abundant strength and courage to see you through...
**Lots of Hugs**
Deborah
Crystal,
I speak from experience when I say, get as much rest as you can. It may feel like you are not "being there" enough for Emily, but you will have even a worse time if you get worn down and sick too. I will pray for you this day that God WILL renew your strength and that He will raise Emily's Calcium levels to sustained normal numbers.
Isaiah 40:28-31
Hast thou not known? hast thou not heard, that the everlasting God, the LORD, the Creator of the ends of the earth, fainteth not, neither is weary? there is no searching of his understanding.
He giveth power to the faint; and to them that have no might he increaseth strength.
Even the youths shall faint and be weary, and the young men shall utterly fall:
But they that wait upon the LORD shall renew their strength; they shall mount up with wings as eagles; they shall run, and not be weary; and they shall walk, and not faint.
Praying, Trusting
praying for you more today.
Peace, peace.
Mommy you need rest...Jesus please give sweet Crystal rest. Hold her in your arms, and soothe her as she longs to be soothed.
I pray that you would be with Emily as well, help her Ca level to be exactly where it needs to be, so this little family can be back together again in the home that you have given them. Be with Madison, and heal her body as well. Bless Frank and Scott, minister to their weary hearts.
Thank you for this awesome family, encourage them, and help them to know that others are holding up their arms during this battle.
In Jesus name.
So be it.
With you in spirit and in prayer praying for healing, strength, and renewal...in all and every area for every person in the family. (((hugs))) sweet crystal, rest in His arms, The Arms that Carry. We are praying, and He is listening...
~kristy in the uk
Crystal,
Please check the e-mail accessible from your profile here. There should be something from CBD. It is NOT junk mail!
Praying!
In His deep abiding love,
Kari
(formerly "asformeandmyhouse")
Praying for all of you! ((HUGE HUG))
Oh Kari thank you thank you thank you! That is incredibly generous and sweet of you. It's making me cry. Just thank you my sweet sister-in-Christ. I can't tell you what it means.
Kristy you have been so good to me and have given me so much great encouragement and I think all the time about your last comment about it being ok to not be brave all the time. Thank you for understanding and just getting it!
Thank you sweet Jeannine!!!!!
(((hugs)))
foppuz your prayers are always so beautiful and they just make me feel the energy of God. You are so good to keep us in your prayers, thank you!
Julie
THANK YOU!!!
Sammy that is good advice and I did get some really good sleep last night. I hope that today will be better and I will just have to remember to lean on our Lord to give me the strength I seem to be lacking today.
Deborah Thank you for keeping us in your prayers it really is the best gift we could receive from anyone.
Thanks dear Molly I think the exact same of you. You have been so amazing and so open and honest with your fears and your praise. Just thank you for being her and for praying for us. I am keeping you and your family in my prayers too. Also I feel like we are related too going through this I just feel so much closer to you and a lot of other ladies who have been supporting me. Like you said what a sisterhood this is!
Jessica Thanks Jessica Emily is doing much better and I think I am still a mess but I am trying to let God pick me back up.
I wish you lived around here!
loved truly Tell you sweet kids thanks so much for their card Emily thought it was really special. And thank you for praying for us all the time!
Steph Thanks for wanting to be here with me (and you have twice!) That means a lot to me that you want to be here. I would love for you to visit if we are still at the hospital tomorrow which it looks like we will be. Poor Emily is going to miss church and her small group so much. Tell them that Emily misses all of them and her heart breaks that she can't be there. Tell Miss Sandy that Emily loved that she called her and she just loves Miss Sandy.
Praying for you Crystal. You are loved by the Lord and so many. Cling to your heavenly Father the way that Emily clings to her daddy. She knows that when she is near her daddy all is well. Cling to Him.
What spunky said is perfection...
That is the image of God we all know but sometimes seem to forget.
He is Abba father. At times like this, He's our Heavenly Father in all his majesty and glory, but he also is our daddy. With strong and comforting arms, he holds us tight and whispers "everything's going to be all right...Hold on tight, daddy's got you...daddy's got you."
Oh, dear Crystal...what a day this has been...your Daddy's got you...it will be all right.
Cathy, Candace's mom, has sent out another EMERGENCY Prayer Request for Candace. (She also posted one in the middle of the night that Janne informed some of us of, as things are not going well). Please keep this little girl in fervent prayer.
Please remember the family of Missey who are having her funeral this morning. I will be having a post honoring Missey through "A Mother's T.R.E.K." and will keep you posted on that as well.
In Him,
Amy
Crystal,
Take my word for it, Emily did as much to raise Summer's spirits as Summer did for Emily's. We loved seeing her and we can't wait 'till she can come home.
Can't wait to see you tomorrow!
Crystal,
Just dropping in to tell you that we are keeping Emily and all of you in prayer. God bless.
Ai Boon
It's okay to feel sad and just drained...What you all are going through is just...hard.
Praying for you all.
Crystal, I'm only now learning about Emily ordeal through Jessica's blog. I went back and read through your archives. Just wanted you to know that I am also praying for Emily and your entire family.
Love in Christ,
Linda
Truly God is carrying you and your family. I am also praying that God will keep your spirit strong and away from feeling guilt. Being a parent is not always easy. Both you and Scott care alot about each one of your children (kittens :-)). Tell Scott to quite being so stubborn and go home to get some decent rest. I can say from experience that trying to get sleep in a hospital is not really restful at all.
He will carry you through all this.
Continued prayers,
Bruce, Jackie, Brandon, Dean and Krysten.
hang in there...I will see you after work tomorrow...love ya
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