Jennifer Norfray Lenz Benefit

Sunday, August 06, 2006

My husband's 10 year high school reunion is coming up (not to mention mine too). Wow that is really crazy!! Anyway we got a flyer with his invitation about a fellow class mate with a very serious disease. Her friends have created a fund to help Jennifer, and would appreciate your help.

Jennifer is a 28-year-old single mom who has an eight-year-old son named Austin. She has been struggling for six years with an extremely rare disease called Churg-Strauss Syndrome which causes devastating injury to the organ systems. Because of this insidious disease, she is unable to work.

Churg-Strauss Syndrome causes fatigue and uncontrollable asthma. Jen's lungs are damaged and she lives on oxygen. She now has anemia and a compromised immune system that is destroying her red blood cells. She requires blood transfusions one to tow times per week. In the past six years, Jennifer has been hospitalized in the intensive care unit too many times to count. Her doctors have asked her to seek treatment at Mayo Clinic, Rochester, Minnesota because this rare disease is only treated in out-of-state hospitals that do not accept her disability coverage.

Donations can be made to:
Jennifer Lenz Fund
Harris Bank
720 S. Eighth Street
West Dundee, IL 60118


The Lenz Fund at Harris Bank will stay open until about October 15th. It is then due to close.

Questions and updates can be directed to Jamie Kleen Bican at Jamie.bican@yahoo.com. You can also contact Arianna Fontana at 847-951-2643.

Please pray for Jennifer and her son Austin as I am sure that this a heartbreaking and unimaginable hard time for them.

"Bear one another's burdens, and so fulfill the law of Christ."
Galatians 6:2 (NKJV)

20 comments:

dr_bristow said...

I just found your blog and read several of your previous entries about your daughter Emily's diagnosis, surgeries, etc. I will definitely be praying for her! What a testimony to the faithfulness of God her story is! I am a medical student and during rounds this morning I just saw a patient who had just had a thyroidectomy. Praise God for your daughter's quick healing time. I'll be praying for her! God bless!

Lynds said...

I will be praying for Jen, and that the illness goes into remission. Ive never heard of it before so I had to read about it.

I also wanted to ask if you had gotten my email to you about digiscrapping?

Sadie Lou said...

Super sad story. *frown*
Thanks for relaying the prayer request, Crystal. As far as 10 year reunions go, my husband I both skipped ours. Some people go all out for them and the whole concept is pretty lost on me.
My sister-in-law got her hair done and bought an outfit and got all dolled-up for the even and the event it's self was like $100 a couple--yikes! Are you guys going?

Crystal said...

Hi laneycakes!! Thanks for stopping in to say hello. Thanks SOOOO much too for praying for Emily that means a ton to me (and thanks for letting me know too)!!!!! I hope to see more of you around!!!

Lyns ~ I did not get your e-mail. =( I left a comment for you on your blog about it. Thanks so much for praying for Jen!! I never heard of her illness so I had to do some reading up on it myself. I just hope we can help her get the money she needs to be properly treated!!

Sadie poo ~ Scott and I most likely will not be going to either of ours. While yes it would be nice to see some old friends/classmates I pretty much know where or at least how to get in contact with our closer friends. Scott's reunion is asking 60$ to go and mine is 100$, YIKES is right!!! We don't have that kind of money. Also it doesn't sound like much fun to me to see all the mean people either and walk down that memory lane, OY!

Sadie Lou said...

Crystal Light--
Agreed! Dan and I can stretch 100$ on a date no problem and I wouldn't want to spend that kind of money to hang around a bunch of people from Highschool
Yikes and YUCK.
*laughing*

Crystal said...

Ya if I had a hundred bucks to spare just for fun I'd go on a date with Scott too!! YUP YUP!!

Steph Stanger said...

hey Crystal, I would love to go back to the mall with you agin! I think tonight is probably better then tomorrow night, but tomorrow night is probably ok too! I should be home around 6 I think. Talk to you then

agodlyhomemaker said...

i posted this on my blog also. i'm praying!

Crystal said...

agodlyhomemaker ~ T.H.A.N.K Y.O.U!

Dandelion Seeds said...

How are things going for her? I was going to update my prayer requests, so let me know... also... how are things with Emily?

In Him,
Amy

Rona's Home Page said...

I saw your prayer request on another blog and felt that I should stop over. I'm so sorry to hear of this mother's struggle. Dealing with a chronic illness and being a parent can definitely be overwhelming but it's so heartwarming to read about the blog communities standing by and giving. I will surely include her in my prayers and will donate what we can.

Anonymous said...

Too bad Jennifer Lenz was diagnosed
with munchuasens and all of this hard work for her benefit was for not.this money is fraud the sick part is her parents knew she had this mental illness and still let the benefit go on as far as im concered they are even bigger crooks. jennifer tried to kill herself twice now all the money from the benefit is for an attorney to try and get custudy of her son back after his father was granted custody, because of her actions so if your going to pray for her, pray for gods forgivness for her sins and asker to return everyone hard earned money by oct 15th the account at harris bank closes

Scott said...

More like too bad people make baseless accusations anonymously on blogs.

Why are we suppose to believe anything an anonymous person posts without a SINGLE SHRED OF EVIDENCE? If what you are saying is true why not say a) who you are or b) how you came about this information. Until we get one or the other your anonymous comments are really not welcome here.

All of your comments from here on out that do not provide one of these things will be deleted. Have fun!

k, thnx, bye

Anonymous said...

Scott-
Scroll up to Jamie Kleen (one of her best friends who worked really hard on the benifit and got screwed) email her and ask her if what i am saying is false if it is then delete everthing i wrote if you find otherwise i feel people should know the truth
k, thnx, bye

Crystal said...

Anonymous,

I did e-mail Jamie and I haven't heard back from her yet. If you have any other questions please e-mail Arianna who also helped with the benefit at

Anie1978 at Hotmail dot Com

Please do not contact me again or my husband unless you can say who you are and have REAL evidence that anything you said is true.

Warmly,
Crystal

Arianna said...

Hey Crystal!
Sorry you have to deal with this. Ignorant people are trying to take matters in their own hands. And she did call me. However, she couldnt provide any information to prove it. Nor a court document or number to attorney. Nor her name. So as far as Im concerned... Its a bitter girl who is going to get sued for slander and much worse. For some of the info she did say is correct, it is also highly confidential and with the HIPPA laws, she has now bound her self into a LOT of trouble. I have already contacted an attorney about this harrassment. And if you are reading this Miss Pepper-Miller if that is your REAL name.... do yourself a favor and mind your own business.

Anonymous said...

its not slander when its true the truth will come out you will see

Anonymous said...

hippa laws? lol look at your blog

Crystal said...

"Anonymous" you have been given EVERY opportunity to prove your accusations. Since you can't please do not come back to this blog.

Warmly,
Crystal

Arianna said...

Wow! I laugh at anonymous. She speaks ignorance and can't prove her "findings." I spoke with sources today that say her findings are not truthful. And from there I contacted an attorney regarding her bashing Jenny's medical conditions & breaking any confidentiality.

"She" states she works in the medical field. So if any truth is in the matter and she found that in medical records from her place of employment, then she will be terminated. AND I say.... IF there is truth....

And also.... she can't know too much about HIPPA laws.... if she speaks of my blog or even your blog Crystal... Because all information regarding Jenny's condition with Churgas Strauss is a known condition that was released and approved by family. That flier was made for that reason. So no violation is made.
Also… My blog is private… So I’m not sure what she’s talking about.
The flier is being passed on by HUNDREDS of people because they know how sick Jenny is.

All the other slander that is spoken of IS hear say.
So its been narrowed down who this "ANONYMOUS" person is. And all I have to say is that they need to stop thinking they are doing it for everyone’s behalf. If you can't state who you are.... You have no reason to speak. Because ultimately... you’re too chicken to identify yourself. Or your findings. Speaking words that can’t be proved or backed up are just that… WORDS.

What exactly do YOU have to lose? Since you’re the one initiating the lawsuit?? So then wouldn’t you be named then?? What do you have to gain from trying to disparage a good person? A good person who is REALLY sick.

And lets say your accusations are true and she is mentally ill…. Which I do not know anything of that matter…. But IF she was ill…. What business is that of yours?

Your speaking of her slashing her wrists and all this other stuff is inappropriate. And has nothing to do with the medical condition of Churgass Strauss.

Regardless, she has fought the Churgass Strauss Syndrome…. And in the end… She has nearly lost the battle of it. Not because of a so-called Mental illness. But because it’s a life threatening disease! Please educate yourself! Until you live a day in the shoes of Jenny’s stop writing blogs trying to diminish her name.

Your lack of knowledge has justified how unintelligent you really are. From our phone conversation earlier…. You haven't covered your tracks with court orders... Or even by contacting an attorney. Your making threats towards people… including myself, when you should not make threats. I don’t appreciate being threatened with empty answers. If your going to bring something to the table… Have your resources available!

So all I have to say to you is Good Luck with all of that. And why don't you get a life instead of posting things on people blogs. If you really want to hash this out. Come speak with me in person or say it to Jenny's face. Or her families.... Or any of these people your accusing of something you don't have facts on.

Oh, that’s right…. You don’t want anyone to know who you are. It’s really unfortunate that you cant back up anything you say. How do you expect any one to believe you?

And answer me this… Are you going to sue all the local papers that have done numerous stories on Jennifer’s behalf to promote the fund?? Oh wait… They don’t run articles that aren’t true either. Hmmmm.
Or are you going to sue Donnelly’s for hosting her benefit?? Oh wait! Why don’t we sue Toyota and Honda and all the other cars that drove everyone to that benefit? Stop making threats that you can’t back.
I would be happy to speak with ANY attorney you have. As do all the other people.

Now we are more concerned with making it a HIGH priority to have you fined and charged with a lot worse that your threats can ever do. Because I will make it my personal mission to be sure that you get charged with whatever I can charge you with. So far you’re looking at Slander & defamation of character. Let me break that down for you….. “Communicating statements that may harm a persons reputation or character.”

And if you claim you have written facts (that aren’t true) possibly libel as well.
Not to mention… breach of confidentiality. So you my dear have a few things to be concerned about. Those aren’t threats. Those are facts. Unlike what you can provide.

If it is true, then when the time comes and presents those “facts” to me.. I will address that then. Because I as well as my family donated money to this fund. Anonymous thinks I had something to do with taking people money fraudulently. If I did. Do you honestly think I would donate my own hard earned money… Or write so passionately of something of such a serious nature. The fliers that were attached to our reunion were sent out in good faith and from what I know… Are the REAL FACTS. Not this garbage anonymous speaks of.

So Anonymous, if you have anything further to say… Please address it to ME. Not Crystal who has nothing to do with this… Until then… I can’t wait for you to entertain me with your ignorance.

Anie1978 AT Hotmail DOT Com

And you already have my phone number….. LOL. So if you want to try and entertain me via telephone, I welcome that as well. Since you weren’t very educating to me earlier either. I’d love to hear you preach some more accusations.

I pity you for not being able to identify yourself. Especially if you speak of something you believe in so much. You can’t be that passionate.

And Crystal… I’m sorry for you having to “SPONSER” this pathetic, unjustified conversation.