Hi friends and family!
Well we didn't get the news we were hoping for but we didn't get the news we were dreading either! My husband Scott already wrote out an e-mail to his friends that I will just copy and paste here pertaining to the results of Emily's scan.
"Well Emily had a scan this morning to determine the progress of her treatment. This is the first scan she had since her radiation treatment in June. The results of the scan showed that there was still cancer in her neck and her lungs so we will have to take her back tomorrow morning for another large dose of radiation. Again, as I stated earlier, this form of radiation treatment doesn't really have any side effects other than she has to be completely isolated for a few days while her radiation levels go down. There's also a catheter she has to get during that time which is painful for her, but it's still not as bad as a lot of other forms of treatment so we're VERY grateful for that.
The goods news is that the cancer is in the same areas as it was 6 months a go, which means it didn't spread to any of the other locations it could have like her legs or even her skull. We've been very nervous the last few days waiting for the scan that it may have spread, and even though we were hoping the radiation would have fully done it's job the first time, we are extremely relieved that there was no expansion.
Emily's in good spirits, she's dreading the catheter and the alone time, but she's remained resilient through everything she's faced up to this and I don't expect that to change.
Personally, I suspect that when the surgeon gets a look at the new scan and sees that the areas in her neck didn't clear up from the radiation he's going to want to cut into the other side of her neck and take that out. (He had declined the surgery previously because he had just operated on the left side and didn't want to put off the radiation treatment while waiting for her body to recover from the surgery.) I'm not all that worried about that actually. Surgery is surgery and obviously neck surgery is very risky, but we have a fantastic surgeon and we'd gladly pay the price of having another life long neck scar to enhance her chances of a full cure. But then that's all speculation on my part at this point.
I'd like to sincerely thank those of you who sent gifts and sent encouraging messages and most of all your prayers and friendships. All that stuff is greatly appreciated by both Emily and my wife and I. Thanks again.I'll give another update after her treatment to let you guys know how she did and again in the future when the situation changes. Thanks again for your time and well wishes."
Scott and I remain hopeful and feel like today is still a small victory because the cancer didn't spread!
A couple of weeks ago I joined an online support group of parents with kids who have Thyroid Cancer. I received a very encouraging message from one of the moms that I wanted to share with you all....
"Crystal -
I just wanted to send you a note about Emily's upcoming scan. Please don't be dismayed if her scan isn't clean. My daughters first scan showed extensive metsto lungs and one knee. Her second scan (11 mos. after 1st RAI, showed mets in both lungs still. She was admitted immediately for 2nd RAI. She was given only75 mCi's and had to stay in hospital for only about 15 hrs. It was much less nessscary the second time, and wasn't for 2 1/2 days like the first. Her subsequentscan (3rd) about 10 mos later was clear! I will pray that this time Emily's scan is clear, and know that I will be thinking about you both during the scan."
Now we are off to celebrate another day that we have with our family and just rejoice that Emily's cancer didn't spread and do our best to remain positive. We are going sledding with our good friends the Stangers!!!!
Don't get me wrong this isn't a walk in the park for me today. It was a VERY hard morning waiting for the results and after hearing that this isn't over yet I felt extremely discouraged and just overwhelmed with the thought of having to wait this out even longer. But my faith is stronger than ever and I feel so blessed to have such amazing friends and family who just want to surround us and Emily with love and encouragement!
OK gotta get ready to go sledding!!!!!!! Blessed be His name!
Scan results!
Monday, January 22, 2007
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26 comments:
thank you for letting us know! I will continue to be praying for you all.
Thats really good news that it didnt spread, we will be praying that this next round of radiation does the trick!! :) HUGS!!
Krystal
Hey Crystal,
I will of course continue to pray. Yes it is very good news that it didn't spread. I'm encouraged by your faith and the strength of your family! Many blessings to you!
~Kelli
Thank you for the update Crystal and Scott! I'll be praying for Emily and for you guys too. And I posted a request for prayer on my blog too.
God bless you with peace as you walk through this!
Crystal,
Im really glad the cancer didnt spread. Thats an encouraging thing. With such phenomenal surgeons and procedures now a days, and also having such a courageous daughter.... Im sure everything will turn out fine in the end. I will pray for you and your family that this time around the radiation kicks the cancers butt!! Let me know if you need anything.
Take care,
Arianna
Oh, what a blessing that the cancer hasn't spread. *hugs* We'll continue praying for Emily, and for your whole family as this thing continues. We love you guys, and we're grateful that you share your happiness and sorrows with us all. :)
Hugs,
Jenna
We continue to pray - and are thankful for all that the Lord has done to this point!!
I will mention the lovingkindnesses of the LORD And the praises of the LORD, According to all that the LORD has bestowed on us, And the great goodness toward the house of Israel, Which He has bestowed on them according to His mercies, According to the multitude of His lovingkindnesses. Is 63:7
Love,
~d
Crystal, Gosh, I am sitting here with tears in my eyes. I am so sorry it wasn't better news. I am thankful the news was positive that it had not spread, however my heart is breaking. I am so sorry. Please know I love you and you are in my prayers. Call if you need to ok! Love you and we will continue to life Em and your entire family up in prayer.
~Bev
Thank you for the update! We are praying for Emily, and for the rest of you too.
Much love!
You are all SO strong and such an inspiration! Thank you for sharing the news. You continue to be in my thoughts and prayers. Much love!! ~April
Crystal and Scott,
I'm sure this weekend was emotionally difficult!! As parents we don't want our children to go through difficult times. I will pray that this second treatment will do the trick!
Love Mlpinky
www.homeschoolblogger.com/mlpinky
Crystal, thank you for letting us know. WIll continue to holdyour family in prayer. I can relate with Emily on the catheter thing - I HATED that! Poops on catheters! Sending you much love from my part of the world.
Valerie (Life's Good)
Hey, Crystal~
I prayed for you throughout the night, and set my alarm and prayed AT the time of the scan. God HAS answered prayers in that the cancer has not spread. GLORY be to HIS NAME! :) NOW, we will continue to fight this cancer with prayer and we'll pray for the doctor's to have wisdom as they continue to treat your sweet Emily. I know that many people are being touched by your family through this, myself included.
In prayer,
YOUR FRIEND LEAH
I'm sorry that you didn't get the news hoped for, but I'm very, very glad that there was no spreading. Lots of {{hugs}} from down here. Someday, I'll be able to come up and really hug you and let Amie hug Emily. Amie said she is a bit discouraged too, but that (in her words) "the prayers worked because she's not sicker and that's good."
Amie is going to send an e-card to Emily.
I just read on Christie's blog about your journey. Just wanted you to know that I will pray for your little girl...
Blessings,
Iris
great news on the good side of thigns and gearing up prayers for the remainder, believing for full recovery and health! tel her we love her and are praying for her!
~kristy
Bless your heart! I am so sorry that you didn't receive the results you had been hoping for, but I am so grateful for the encouragement and hope that your new support group offers you. I will most certainly keep Emily in our prayers.
Your faith and strength are so impressive.
And the warmth and love of family and God shines through your whole blog.
P.S. I ain't that smart....how can I put the Praying for Emily button on my blog?
OH PRAISE GOD!!!
What a joy to know that nothing has spread and to "hear" the kind of peace each of you has right now! I will be praying that the catheter will be less annoying for Emily and that this last radiation will be just that -- the last!!!
"For the cloud of the LORD was above the tabernacle by day, and fire was over it by night, in the sight of all the house of Israel, throughout all their journeys." Ex. 40:38 I pray that you will *see* His glory clearly every day and *feel* the glow of His presence and love each night, for the rest of this journey. We'll be *walking* with you!!!
You are all in my families prayers!
What an encouraging e-mail from the other mom! A group like that can really be a strong source of support!
Emily is such a strong little girl. I'm sorry that the scan wasn't clear, but thankful that the it has not spread, that is wonderful, wonderful news!
Lifting you in prayer before the Lord!!
Yvonne (formally Adrienne to you :-)
I just read this and I wanted to post a quick comment to let you know that you, Emily and your family are in my thoughts and prayers!
I'm here if you need anything at all. I don't know how you are holding up, I truely admire and look up to you Crystal (and Scott). I will not only pray for all your wellness but for you all to have strength as well!
Still praying in South Carolina for ALL of you!
Wow..glad it didn't spread and hope it will be over soon. My friend Alan Hoffstedter stopped by and talked to Jeff (my brother)when you were there. He had his Thyroid removed and has been taking pills for years. He said about Emily: She is young and precious
Ha, no Mis he talked to me. He's a very nice guy and apparently long time friends with the doctor who is handling Emily's radiation treatment, Dr. Wagner. Who is easily the best doctor I have ever had the pleasure of dealing with. Easily. I can't say enough about the man.
Anyway, Alan is a nice guy, please thank him for stopping by.
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