LONG over due Emily update!

Monday, September 22, 2008

I'm so sorry I haven't made this post sooner. I don't know why it's so hard for me...I think because I want to write really well and express my deep gratitude to everyone who has been so beyond kind to us. I just don't think there is anything that would be great enough in my mind to express our sincere and humble appreciation. Also I'm not good at all at explaining the medical stuff so I've been waiting for my sweet husband to write that part. He finally did tonight...but first I will attempt to try and just tell you a little of how grateful we are for all of you.

Since our very first post about Emily's diagnosis, the way hundreds of people embraced and surrounded our family and our daughter was beautifully overwhelming. People from all over the world, from Alaska, the UK, Canada, California, to right next door, covered us in prayer and more. I know that Scott and I and my entire family were in awe over the love that was poured into this little old blog. From this beautiful invention called internet the world was able to reach into our home and our hearts and forever change the journey we first began 2 years and 8 months ago.

Our inbox was filled with e-mails about how not only were you praying for Emily and our family but your friends, families, and churches were also praying for us. Emily received cards, letters, gifts, made friends and pen pals....it was amazing. Our church family and neighbors literally fed our family for 3 months during the most draining part of our journey. We will forever be grateful and never forget the love so generously extended to our daughter and family.

YOU carried us threw and gave us strength and YOU were Jesus to us. From the deepest bottom of my heart, thank you.

OK now that I'm probably done gushing my cheesy heart out to you...here is the medical stuff Scott wrote to further explain Emily's results.

Emily's most recent scan showed no visible sign of iodine uptake, which means that all the iodine that is suppose to be sucked into her thyroid cells (cancer) just went through her body. This, combined with her VERY low level thyroglobulin test strongly suggests that there is no cancer left in her body. Or at the very least very trace amounts.

This is, of course, all very good news. Our radiologist told us that Emily is to get her thyroglobulin level tested routinely, and if it never goes up, he'll never have to see her again. If it starts to slowly rise we will take her back to him for another scan and if it shows some iodine uptake we will give her another dose of iodine radiation treatment. Hopefully this will never happen. The worst case scenario is that the thyroglobulin goes up, we go for the scan, and the iodine doesn't absorb. If this occurs it most likely means that cancer is growing but it no longer can be treated with iodine. In this circumstance if the cancer is in a central location we would be able to operate, or if it is widespread we would have to look at alternate treatments like exterior radiation or chemo.

But, fortunately, these are worst case scenarios that are not likely to ever happen. In fact, our radiologist stated that he expect Emily to live a long and healthy life and live long enough to see her grandchildren grow up. We should all be so lucky I suppose.



Emily is celebrating her 12th birthday tomorrow! Tonight we had her "Birthday Eve" (that's what Emily wanted to call it!) and she opened her presents. This is her with her Webkins. The white one and pink one are her new ones.

12 comments:

Anonymous said...

How great is the love the Father has lavished on us - that we should be called the children of God - for that IS what we are.

Rejoicing with you all over the amazing love of Father demonstrated in the people He sent to love you and the news from the Dr.

May the Lord continue to be glorified in Emily's testimony. (And what a testimony it is!!) :)

Love you!!!
~d

~Bev~ said...

Oh Crystal this is such amazing news! You & Scott have traveled a road no parent ever wantes to even look at. Who would have thought when she was laying in that hospital bed with all of those bandages and drain tubes and looking all pitiful that she woud be celebrating at Disney world and would be given a clean bill of health! You & Scott are such faithful parents to her, and such faithful children to God and he has blessed you and healed Em in a way we are all very much pleased with! We sure didn't know which way he was going to heal her, and I am so happy he chose to wipe that cancer away!Still going to pray for her! We love you here in Tn!, more than ya can ever know! can't wait for the Christmas card this year! **huggggg** Love ya sweetie!
~Bev~

Sadie said...

You guys are so awesome, no, really.
And God--the Living God we serve--is more awesome than you and he's more powerful than cancer--He heals the sick when we ask Him to in Faith! And sometimes He doesn't--but He rewards us with eternal life.
I am in awe of Emily's bravery and of your strength as parents.
Thanks for sending me to email update--I will gladly share this praise report with our body.
Loves, hugs and Kisses!
~Sadie Lou Who
http://craftilyeverafter.blogspot.com

~Bev~ said...

I made a post about little miss ok! Since I have asked for prayer for her a zillion times I thought I would show God's blessings!
Love ya

Crystal said...

Thanks so much for your comments guys it really means SO MUCH to me. Also thank you for your faithfulness and continued prayers. (((hugs)))

Anonymous said...

God is so good!!

That means it's been like 3 years since we met online. How cool!

Love ya,
~Leah

Adrian said...

Its wonderful that so many people have showed their to you and your family. That has to be so encouraging. I'm still praying for Emily to have a healthy happy life. Happy Birthday to her!! She is so beautiful!

Steve & Sara said...

Yeah for Emily!! I am so excited that she is cancer free!!! I am also excited that your prayers were answered.

Happy 12th birthday Emily!!!

Swinging Sammy said...

Thanks for letting me know, I am SO happy for you guys! What an awesome testimony!

Sherri said...

It's such a miracle. I can't imagine the joy and relief after so much uncertainty. It puts chills on me to think about it....she is such an amazing, beautiful young lady!!

Sprittibee said...

So thrilled for you. I want to also tell you about this site (I hope you will check in to it in case you ever hear of someone else in need of treatments). www.nochemo.net We have a friend who went to them because she had been told there was nothing the western med doctors could do for her. Her cancer was too agressive. She was over 60. She took this treatment (radiation and chemo free) and is now cancer free. I'm a believer. If someone in my family ever came back home with a bad tox report, I would be on a bus to Mexico. :)

reneegrace said...

I doubt you remember me (from Choosing Home blog and forums... ReneeM - or reneegrace... )

ANYWAY. I stumbled upon your name on Leah's (in AK) blog, and recognized you, and have scrolled down to find out about Emily... and am so thrilled for you and her and your family!!

You all look great by the way! :)